Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. "Go enjoy it, 'cause there are people fighting like hell for it.". Find an Obituary. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. real family is great. A double-lung transplant, when successful, can add years to a patients life. "Claire's gift is huge, I want your family to know that your daughter is a hero. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. Despite suffering from a critical illness, she maintained a positive attitude to life. We invite you to share condolences for Claire Wineland . [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. On Monday afternoon, her mother received word that Claire had already made a difference. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Read about our approach to external linking. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. She had a popular YouTube channel, gave Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. Her father credits Claire with teaching him to not be afraid of what hasnt happened yet and to learn to love what is.. Claire, who understood the importance of organ donation, was a donor herself. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. Wineland hosted many videos for the channel. Discovery Company. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. We invite you to share condolences for Claire Wineland in our Guest Book. The Foundation has funded more than 26 families till now. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. "It hurts everything inside of me to make this video," she said into the camera. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. There is no passionate rant to be had here I am just happy and thought I would let you all know. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. Death is Inevitable. The BBC is not responsible for the content of external sites. Claires parents learned to trust their independent and strong-willed daughter. "If my biggest problem in life was to be healthy, I'd be incredibly bored. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! It hurts everything inside of me to make this video, she said into the camera. The family received immense support from friends, and community. Updated It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Roy E Disney Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. She was 21. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. Snap Greene is the alter-ego of 13 year old Claire Wineland. She inspired countless people, invited no, demanded honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit. In one of the last videos Claire posted, she went where she hadnt before. She had a popular YouTube channel, gave . Today, Claires Place Foundation continues to carry on Claires legacy. Im grateful for my own head and for all the weird things in it. This time, she was raw and allowed herself to cry. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. Founded a charity to help others suffering from the disease. I am also, like thousands of other people living on this planet, sick. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. To face each day, Claire Wineland undergoes hours of breathing treatments. Yeager posted a video of herself doing a happy dance with friends in the waiting room. She wasnt done contributing. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. So grateful for everything this month. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Regarding her nationality, Wineland was an American and ethnicity wise she was white. Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. Read about our approach to external linking. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. The years of telling myself I can do it on my own are over.. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Died: Sunday, September 2, 2018 (Who else died on September 2?). [3] She joined the Philips "Breathless Choir" as a soloist. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. Jack Wild Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). I'm grateful for the chance to keep being a person," she said. Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Claires Place Foundation is planning to continue extending support to patients. Its a GO!! Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. Im just really overwhelmingly grateful for all of this. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. 2:33 PM EDT, Tue September 4, 2018. Claire was born with a severe disease-Cystic fibrosis (CF), a condition that affects breathing and digestion. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. Now that Im looking at it as something I have to do Im willing to deal with anything.. At the time of birth, she had the life expectancy of only 5 years old. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. . She did. She has a younger sister named Ellie. According to doctors, she had a survival chance of 1%. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. She played hide-and-seek with nurses and left explosions of glitter in her wake. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. James Watt Cause of Death, Age of Death, and Other Facts! The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. She was of the mind that she would leave this world with the body she came in with. The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. She needed financial help. I would like to acknowledge Claire Wineland who passed away last night. She had a popular YouTube channel, gave Then came the call that offered new life. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. I have step parents that are fabulous. Youll be missed deeply. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. I would like to acknowledge Claire Wineland who passed away last night. She listened to the risks and the long list of side effects and emerged unfazed. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. Claire was an activist, author, TEDx Speaker, social media. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! You are an inspiration and brought joy to many. Read full obituary. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. She was 21. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. She once escaped from the hospital so she could attend a Bernie Sanders rally. She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc [2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Cystic fibrosis did not define Claire Wineland. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. La Jolla, California CNN . Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. The medical team that tended to her became family. Get breaking news alerts& today's headlines inyour inbox. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! I want to see what happens in life. Her foundation said she had died peacefully, surrounded by family. She performed with Philips Breathless Choir, as a solo singer. pic.twitter.com/BsTEFmquR7. Dedicated daily to memorializing notable personalities. Revealed on her left ankle was a tattoo: the thumbs-up Dont Panic logo from The Hitchhikers Guide to the Galaxy.. This time, she was raw and allowed herself to cry. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. ! she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Is there someone you miss whose memory should be honored? At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Menu. Claire and her mother beamed in a photo posted on social media after they learned her transplant was a go. Sign up for our email list to stay in the know. She had a popular YouTube channel, gave . I dont want to actually die. She has a younger sister namedEllie Wineland. See yall on [the] other side.. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. When she turned 13, she had a routine surgery that led to a blood infection that caused lung failure after which she was placed in a medically-induced coma. The cause of death was a massive stroke she suffered soon after the transplant surgery. But Claire took on the evaluation process to get on the list with laser focus. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. The years of telling myself I can do it on my own are over. She died on Sunday September 2, 2018, after suffering a. I didnt realize how much I didnt expect to live this long. She was also a speaker for the motivational TEDx Talks.. You are an inspiration and brought joy to many. Claire Wineland was a person who did not like to be pitied. Check out the death cause, death date, and more facts about the. Some people worried that she'd waited too long and wouldn't be given the chance at continued life.But Claire took on the evaluation process to get on the list with laser focus. "None of it spooked me," Claire said afterward. A quarter of Claires life was spent in the hospital. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. YouTube star Claire Wineland has died a week after having a lung transplant. 2023 BBC. 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Jace Prescott died at age 31, too young. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. She underwent more than 30 surgeries during her lifetime. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. Claires gift is huge, I want your family to know that your daughter is a hero.. Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. Due to her life treatning disease, she spent the majority of her life in hospital. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. She was 21. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. She had a younger sister named, Ellie. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. View this post on Instagram She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. The BBC is not responsible for the content of external sites. She never emerged from her medically induced coma. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? [11], On August 26, 2018, Wineland underwent a double lung transplant. She has gone on to become an advocate for others suffering from the disease she has had since birth. [8] She was a TEDx speaker and spoke at a number of conferences worldwide. I use to live half time with my dad and half with my mom, but since I got sick we . Before signing off, Claire implored viewers to do one thing. There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. In 2017, Yeager recalled a conversation with Claire about death. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. However, her illness forced her to leave the platform in 2017. The cause of death was a massive. Required fields are marked *. Your effort and contribution in providing this feedback is much She was an avid dog lover and had a dog named- Daisy.. 2023 Cable News Network. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. What happened in the Ukraine helicopter crash? There is no passionate rant to be had here I am just happy and thought I would let you all know. Im not an innocent and Im not a child. "I had to be honest," she once explained. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. She loved every moment of her life, even those days when she was in hospital. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Living a life we can be proud of is something we can control." - Claire Wineland. Senior producer, Legacy.com. "It's a GO!!!" Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. "Go enjoy your life. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. Notable quote: I do these talks to make a point. Thus, at the age of 13, Wineland founded her non-profit organization, Claires Place Foundation. The organization aimed at providing financial and emotional assistance to patients of cystic fibrosis, and their families. At the time of birth, she had the life expectancy of only 5 years old. Wineland was a singer, artist, and composer. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Her foundation said she had died peacefully, surrounded by family. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. The BBC is not responsible for the content of external sites. [4], Wineland was born with cystic fibrosis in Austin, Texas. Find an Obituary . She passed away peacefully, with her parents by her side. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Wineland was invited as a speaker at many international conferences. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. By asking for it, she said, she could relax and get in the headspace for whatever would come next. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). Read about our approach to external linking. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. She expected to die young. She had a popular YouTube channel, gave She joked that the squats she was doing, upon doctor's orders, would help get her more than lungs. She decorated her hospital room, and posted inspirational messages on its walls. Its not for me and never has been.. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. I'm not an innocent and I'm not a child," she wrote in March. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. Life isnt just about being happy. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Its not about how you feel second to second, she said. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Hap Moran Cause of Death, Age of Death, and Other Facts! [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Cystic fibrosis is a genetic condition with no known cure. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. Who was Ukrainian minister Denys Monastyrsky? Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. Search by Name. Im grateful for the chance to keep being a person. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. She has a younger sister named Ellie Wineland. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. The cause of death was a massive stroke she suffered soon after the transplant surgery. None of it spooked me, Claire said afterward. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. On Monday afternoon, her mother received word that Claire had already made a difference. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. All Rights Reserved. Did you encounter any technical issues? So grateful for everything this month. She passed away peacefully, with her parents by her side. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. My parents are divorced. She is my new hero, and forever. The Times-Picayune. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". appreciated. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. Anna May Wong Cause of Death, Age of Death, and Other Facts! A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare. "It's not for me and never has been. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. However, her illness forced her to leave the platform in 2017. I have my mother and Ellie is my sister. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. @larissaperoux We some cheese balls just cheesing it up. Really. I want to see where it goes. Im grateful for all the people who donated to help me get through transplant. Jace Prescott Cause of Death, Date of Death, and More! She never emerged from her medically induced coma. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Since there was no formal contract in place, she did not have any legal option too. Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. Obituaries Section. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Shed worked hard to get there, was focused on her self-care and getting stronger. She watched one of her doctors squirm as he gave her the safe-sex talk. Sympathy . Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. I didnt expect to have a chance. They remained close friends, and shared the responsibilities of taking care of their daughter. The nine-hour surgery went well, and her mother reported that the lungs were working great. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Wineland uploaded videos in her personal vlog. Your email address will not be published. I'm willing to deal with anything.". The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. ", Claire Wineland, reflecting on her outlook on life. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Im grateful for the chance to keep being a person. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Cystic fibrosis is a genetic condition with no known cure. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Her organs were made available for transplant. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. She was a wonderful person and the world . The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. Claire Wineland died at age 21, too young. But not long after the successful surgery, hope turned to fear. Why a terminally ill young woman has changed her mind about living. Claire Wineland's death was caused by stroke. Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. But last month, as . A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. Submit an Obituary. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. Living a life we can be proud of is something we can control. She knew that the call could come at any minute, and on August 26, it did. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. "The nine-hour surgery went well, and her mother reported that the lungs were working great. Claire Wineland (19972018), inspiring speaker lived with cystic fibrosis, Jay Briscoe (19842023), Ring of Honor wrestler, C.J. When she was unable to create videos due to declining health, the company cut her off. She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. She needed financial help. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. You can suffer, you can experience what its like to feel like a human beingall those messy and gross emotionsand yet you can make a life for yourself that you are very, very proud of., What people said about her: In Claire fashion, she is an organ donor. She was placed in a medically-induced coma, for 16 days. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The social media sensation died Sunday, a week after she suffered a stroke following surgery for a double lung . I'm grateful for the chance to keep being a person," she said. Read about our approach to external linking. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. Shed travel, answer calls for speaking engagements and put energy into her foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. Who is Claire Wineland? Some people worried that shed waited too long and wouldnt be given the chance at continued life. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. Get to know the real life super hero behind our bubbly Snap identity. She played hide-and-seek with nurses and left explosions of glitter in her wake. @larissaperoux We some cheese balls just cheesing it up. She has gone on to become an advocate for others suffering from the disease she has had since birth. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. An appearance in the know with Claire about Death said she had the life expectancy of 5. 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